|Words to Live By|
We learned a lot about things we didn't even want to know.
|My beautiful daughter Jessica|
She dealt with an awesome number of medical appointments and tests for several months at her home in Portland as the sickness progressed, slowly stealing her independence and mobility. MRIs, ultrasounds, nerve conductivity tests ("Like being tazered, Mom," she said), blood tests, panels sent to the Mayo Clinic, 3 Lyme tests, two neurologists, two gastroenterologists, an OBGYN, two primary practitioners and a nutritionist working to rule out the "biggies" while they tried to pinpoint the cause.
|My Princess last summer|
I don't have photos of the airports - we had to arrange for a wheelchair for her at each one, and what we learned about the other travelers was both good and bad. Some elbowed us out of the way, while others gave us sunshine smiles that let us know they were familiar with the challenges of special needs. We stayed in hotels with handicap bathrooms and used the handicap stalls in restaurants. We learned about access and non-access. My heart was in my throat when she had to go through security, stand up and step into the x-ray booth - tears choked me up and I had to turn so she wouldn't see. She wore flip flops on her feet in below freezing weather because the pain was so bad she couldn't put on socks and shoes.
|Love sent from her brother Torey|
|Sleeping and sleeping|
|Creativity supports healing!|
|Getting ready to fix that owl|
|Happy Birthday my darling, and many more!|
A few weeks after her arrival we celebrated her 26th birthday, and she made a heartfelt wish. May all her wishes come true xo.
|Shake it off!|
We're still working on shaking this thing off. It can take from 3 months to a year. She has to avoid vaccinations and eat as much organic food as possible. Exercise to build back the muscle that the sickness ravaged. Thank goodness for Penn State Sports Medicine's physical therapy. This week they had her on the treadmill, backwards and inclined uphill (slowly). They are miracle workers there, especially Jennifer Frasier. The BEST. Thank you Penn State and Rob for our insurance!! We've paid and paid the premiums for years, never knowing how important it would be.
The treatment for Jessie's illness was an IGIV session that can cost from $8 - 15,000 dollars. Each IGIV treatment is made up of over a thousand blood donors, each one screened and tested for purity. It chases the bad antibodies out of the system, giving it time to recover. I am so very grateful to each and every one of those donors. I sent prayers to all of them to say thank you. You never know when you're on the table giving your blood who it might help - but know that there are many people out there who are ever so grateful.
|How life should be|
We forgave those who elbowed and shuffled to the front ahead of us. I wanted to smack them, really hard.
|Ice pack footie shoes from Martin!|
|The Princess becomes empowered again - yay!!|
There's a very long list of what we've learned as a result of this challenge. We've learned what's important. We've learned compassion, patience, faith, quality, generosity, companionship, creativity, strength, and so many other things it would take another post.
Namaste and special blessings to all facing challenges of any kind.